Category Archives: Experiences and Background

Things I’ve seen or experienced as well as some background info on me, and my experience of Asperger Syndrome and ADHD.

I hear what you’re saying!

This Tuesday I participated in an education for health professionals. I was actually being a “test subject” for a diagnostic test for Asperger Syndrome, the professionals were learning to use. They were watching over a CCTV when I took the test. And, even though I went on with my life after the test was done (yay, work) I am sure they discussed it as well.

The test was pretty different from the Asperger test I took when I got my diagnosis. More of an interview than a test, actually.

Anyway, the curious thing about this test was a question about halfway through. Where the tester says, “imagine I’m from another planet and know nothing about anything earthly… now I’d like you to tell me how you brush your teeth.”

So, the first question I had (and I am sure any Aspie has a similar thought) was, “so, how much theory on chewing, teeth, food, and hygiene do you need… and … Oh I have an electric tooth brush… how about electricity….?”

Of course, it turned out that, nope, this alien that knew “nothing” only needed to know about the tooth brushing per se. (I bet the impreciseness was the real test!)

I’ve heard people working with Aspies say they had no clue how imprecisely they were communicating until they started talking to Aspies. Trust me, I cannot agree more! πŸ™‚

I don’t let people get away with fuzzy or imprecise language. Sure, if it’s lunch time and we’re discussing a movie, I’m fine with having an idea about what they are trying to say, but when it’s talk about how to perform some task at work or in any other project, precise and clear language is a requirement. In most of the cases, colleagues actually appreciate when I make a salesperson, project manager, or other person explain what they mean.

Here’s an example, not from work, but from a course in every day communication. The teacher talks about how a person with AS gave the advice to “scan for their interests when they meet people.” Guess if that one got me started? The very first image I had was of a bar code scanner… like people would have their interests bar coded in their forehead or something just as stupid… Okay, I quickly discarded that one, but still felt the need to clarify this “scanning” business. Do the person ask people if they too have the interest, or do the person listen to what people say to see if they are talking about something “interesting” or, what?

Of course, in this case the word “scan” is supposed to vaguely include everything from listening to asking questions to test what happens if you steer the conversation to topics about the interest to checking for word usage, heck even mannerisms, etc etc.

This, of course, doesn’t always work, like when I used the phrase “going from clarity to clarity” in a mail to a customer and got back “so, are you going to watch the race on Saturday?” It turns out the phrase I used is also used by a Swedish commenter in formula 1 racing…

I’ve noticed that people are very content with not understanding everything they are told. Which of course is very frustrating if you are trying to give someone instructions, get an “ok, I get it”, just to see them walk off in the wrong direction (and not just because there was a mixup in respect to left and right :)).

I also think people with AS are sometimes afraid to ask because they assume they are to blame for not understanding… Which in my experience is an incorrect assumption. By all means, communication is a team work between two or more people. It takes work doing both the “sending” and “receiving”, but that just means that if the sending is sloppy and the reception is poor… both sides have to improve.

So, communicating with an Aspie (well, at least this Aspie) requires precise language, or – hopefully – you’ll get an earful of clarifying questions.

Another thing I’ve observed, in myself, with respect to language and the meaning of words, is that I interpret things literally. This isn’t really something I strain to do, rather the opposite. Hearing language like “cutting to the chase” or “that something boils down to something else” gives me images of knives, running, boiling kettles, and melting “somethings”, and although I get what’s trying to be said, I sometimes get stuck trying to untangle the imagery, losing whatever comes after.

Sometimes I simply don’t get what the image is supposed to represent, or it takes that extra moment to interpret and I lose focus, or I’m tired or bored and I get these “humorous” thoughts like, “sure, let’s cut everyone between us and Chase, and we’ll meet virtually no opposition getting to them!” or “cutting to the chase? you mean chasing to the cut… because most sane people will run as soon as the intended cutting becomes obvious…” or “I’m guessing that ”something else” is a pretty hot topic, from all the boiling?”

Or how about the other day, when we had Kangaroo stew at the lunch restaurant… we were “jumping” at the opportunity, but unfortunately the meat was a bit “bouncy” and the seasoning lacked that extra “kick” you’d expect from Kangaroo stew… (And there goes the vegan audience… ah well 😐 hehehe)…

Sometimes, just listening to people is a chore in itself!

Right is Left, and Left is Lost…

Or, don’t talk about left and right with me!

The other day I had this incredibly stupid encounter.

In a hurry to the train station, I’m stopped by a couple in a car (about 50 meters from the station) asking me how to get to the station by car – I’m on the sidewalk. (In their defense, Solna station, where this were, is pretty complex.)

I point (to my right, with my whole right arm) and ask them if they see the (large, clearly) red buses. The guy goes, “uhuh, so it’s to the left then?”

Instead of verifying which hand I am pointing with, I take him on his words saying, “uh yeah right…”

He sounded so sure, I assumed he knew what he was talking about. And I had this really clear picture, in my head, of where they should go… (Guess they didn’t see it… Hehehe…)

My feel for left and right is slightly above the level where my drivers ed teacher had to write a large “L” on my left hand when I took my license, but it was close!

Even though this was a harmless situation, my tendency to not verify the left-right thing, but just go on the tone of the guys voice, is a bit dangerous, and it wouldn’t be the first time I put too much trust in what another person thinks about something… (And if I had to identify the cause I’d say it’s probably impulsiveness from ADHD, combined with some poor mentalization from AS…)

Of course the couple in the car head off in the totally wrong direction and I go, duh! (I actually suspected he had the same left-right issues I have, once I’ve realized my mistake – 2 seconds after the encounter.) In my defense though, there were no damn buses where they were heading, and I were pointing with my whole arm!

After a while it hits me; one of them were most likely getting off at the station, the same station I were heading for! I should have told them to get out of the car and follow my lead (through an underpass and another 25 meters to the station)…

I can always congratulate myself to having had this revelation only a half hour or so after it happened. In extreme cases it takes years, and if I had seen the situation clearly just as it happened, it would have made a large impact.

It’s actually almost funny how the time to figure things out seems to be positively correlated to the importance of the decision… Ah well…

On the other hand, we don’t say “hindsight is 20-20” for nothing, do we?

A Year Ago

About a year ago I was diagnosed with Asperger Syndrom and ADHD. Since I feel I’ve been able to figure out a few things since then, I’ll try to write about it here.

Now, if I were to write about cars, I wouldn’t need much explanation – just dive right into the cc:s, mph:s and so on so forth (disclaimer: I know almost nothing about cars, owned one the first year after I got my license, live in a part of my country with lots of commuter traffic, so haven’t missed a car since then…)

On the other hand, if this blog was about … let’s say Data Mining… I would have to explain what “Data Mining” was a bit before talking about it… but I would be able to do that, with a few well phrased sentences…

However, when it comes to Asperger (ADHD isn’t that much of a problem in this respect) it’s not always that easy to explain it or generalize about it. What I’ve been able to figure out is that people with Asperger has it in different degrees, and when it comes to people like me, with a double diagnose (it turns out it’s not that uncommon to have both Asperger and ADHD or ADD) just separating the two becomes a chore.

spectrumI think the most important thing to think about when discussing Asperger is that it is a disorder on the autism spectrum. I interpret that rather literary. Just as it’s hard to tell exactly when red becomes orange or orange becomes yellow on the color spectrum, it’s hard to separate different symptoms of Asperger/Autism. They bleed into each other, making it problematic/impossible to separate one from the other.

In practical terms this means one Aspie might be completely different from another. I’ve heard comments such as “…do you have Asperger? I know people with Asperger and you’re not at all like them…” – so, yeah… we Aspies are really individualistic! πŸ™‚

I’ve added a few links on Asperger and ADHD below. I’ll talk about these two neurological disabilities (but I’m pretty sure I’ll be unable to tell which one of them is in play – if not both – in some cases) from my unique perspective, how I experience them, what I do to deal with them, etc etc. Hopefully I’ll be able to contribute to someone! πŸ˜€

The home page of Tony Attwood, one of the authorities on Asperger: http://www.tonyattwood.com.au

This is a fairly long article on Asperger Syndrome (however, I needed to axe [Firefox + Ad Block Plus rocks!] some of the ads in order to “survive” the read): http://www.emedicinehealth.com/asperger_syndrome/article_em.htm

Here’s a third link on Asperger (http://www.mayoclinic.com/health/aspergers-syndrome/DS00551)…

And here’s a Wikipedia article on ADHD (I’m not sure about Wikipedia’s treatment on Asperger yet…): http://en.wikipedia.org/wiki/Attention-deficit_hyperactivity_disorder